When the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) launched TSParentsOnline, an Internet blog resource for parents of children with TS, on Nov. 7, it had no idea the venture would take off so quickly.
But one month and several thousands of hits later, TSParentsOnline — which can be found by visiting https://njcts.org/tsparents — continues to grow into one of the World Wide Web’s premier Tourette Syndrome-related blogs and resources in general.
Featuring original posts and content from more than two dozen regular contributors, TSParentsOnline has boasted at least one new entry almost every day since its inception. Some of the topics covered by parents from locations all over the United States — as well as Canada, England, the Netherlands and Belgium — include doctors, medication, tics, homeschooling, stress, success, fears and infant behavior.
One of the most popular posts was from a New Jersey mother seeking input from other parents to help deal with her 12-year-old son, who has Tourette Syndrome.
“Kyle went from this happy child to a sad 12-year-old middle school student. We see a doctor in New York City monthly and a therapist here weekly. He is on Clonidine and Zoloft. I just took him off Risperidone because I didn’t feel it was doing much for him,” the mother wrote. “I would love to hear other mom’s or dad’s inputs – to talk to someone else who is going through this would be like therapy for me. Other people can say they understand, but they cannot unless their child has TS and the other things that go with it. There are times when I’m not sure I can make it through this, as I’m sure all moms in this situation have felt. I would love to vent and also learn what possibly worked and did not work for them.”
Within 24 hours, the mother had more than a dozen responses with all sorts of advice and opinions to sort through — demonstrating the powerful nature of a resource such as TSParentsOnline.
Parents wishing to participate as a regular contributor to TSParentsOnline should contact the blog’s administrator at firstname.lastname@example.org. More information is available by visiting http://twitter.com/TSParentsOnline.