Collaborative Partnerships for the Tourette Syndrome Community
NJ Center for Tourette Syndrome & Associated Disorders and its teenagers and families have been presenting this program to resident physicians in New Jersey hospitals since 2011
ENGLEWOOD CLIFFS, N.J. – The NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) has graciously accepted a $5,000 grant from the Arnold P. Gold Foundation to help fund the organization’s landmark Patient-Centered Medical Education Program, which was created in 2011 to present information about Tourette Syndrome patient diagnosis and quality of life in grand rounds and workshop formats to doctors, nurses, resident physicians and other health-care providers at hospitals in every corner of New Jersey and beyond.
Patient-Centered Medical Education sessions consist of a one-hour conference in which two or three adolescents with TS, and their parents, describe their experience with this inherited, misunderstood and misdiagnosed neurological disorder at school, at home and in the community. The presentations focus on the experience of initial diagnosis, on quality of life and on encounters with physicians and the health-care system.
“We look forward to hearing about this project and wish the NJ Center for Tourette Syndrome a great deal of success,” said Sharrie McIntosh, Vice President of Programs and Strategic Development for the Arnold P. Gold Foundation, which provides financial support for programs and projects that encourage compassionate and relationship-centered health care.
NJCTS has fostered such relationships through Patient-Centered Medical Education presentations at more than a dozen New Jersey hospitals – including Newark Beth Israel Medical Center, Overlook Medical Center, Goryeb Children’s Hospital, Bristol-Myers Squibb Children’s Hospital, Monmouth Medical Center and Jersey Shore Medical Center. The Patient-Centered Medical Education program also was presented in October 2013 to more than 120 doctors at the Yale University School of Medicine in New Haven, Conn.
“Patient-Centered Medical Education is one of the NJ Center for Tourette Syndrome’s most innovative and important programs,” NJCTS Executive Director Faith W. Rice said. “We are honored to receive this grant and appreciate the Arnold P. Gold Foundation’s commitment to serving the 1 in 100 children and families affected by Tourette Syndrome. We believe the tools and strategies delivered via our Patient-Centered Medical Education program address issues TS families and health-care providers face each day.”
More information about the Patient-Centered Medical Education Program is available by calling 908-575-7350 or by visiting www.njcts.org.
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NJ Center for Tourette Syndrome and Associated Disorders, Inc. Collaborative partnerships