High school students representing several states gathered to build advocacy skills, self-leadership, and resilience at the 12th annual Tim Howard Leadership Academy, hosted by the NJ Center for Tourette Syndrome and Associated Disorders (NJCTS) on the Busch Campus of Rutgers University in Piscataway, NJ, from July 31 to August 3, 2025.
Founded in 2014 in partnership with Tim Howard—former professional soccer player, current broadcaster, and internationally recognized advocate for Tourette Syndrome (TS)—the Academy remains the only leadership program in the nation specifically designed for teens diagnosed with TS. This year, 22 teens, ages 15 to 18, traveled from across the country, including states as far away as Texas.
Throughout the four-day program, participants engaged with medical professionals, psychologists, and researchers to deepen their understanding of Tourette Syndrome. They also bonded with peers during group activities such as vision board workshops and friendly games of four-square in the quad. A team of peer mentors, called coaches, most of whom are alumni of the Academy themselves, guided and supported the teens through the experience.
On Friday, the group toured Sampled Labs, home of the NJCTS Cell and DNA Repository, where they explored current TS genetic research led by Dr. Jay Tischfield and the TIC Genetics Research Project at Rutgers. On Saturday afternoon, Tim Howard joined via Zoom while at the Premier League Summer Series, to speak with participants about his personal journey with TS.
“Having Tourette Syndrome is a part of me,” said the former U.S. Men’s National Team goalkeeper. “I’m a father, a son, I used to be a soccer player, now I’m a tv commentator. I’m a bunch of things. Part of that is Tourette Syndrome, but it’s not the only thing.”
Tourette Syndrome is a neurobiological disorder characterized by involuntary movements and vocalizations called tics. As many as 1 in 50 school-aged children show signs of TS or other tic disorders. Many also experience co-occurring conditions such as ADHD, OCD, and anxiety.
A 2022 survey by the Tourette Association of America found that:
- 80% of students with TS reported their tics negatively affected their school experience,
- 70% had experienced bullying,
- 38% feared social isolation due to their disorder.
“The goal of the Academy is for teens to leave feeling empowered, equipped to advocate for themselves, and ready to educate others,” said Academy Director Melissa Fowler. “We want them to know they are not alone—and that they have a voice.”
Applications for the 2026 Tim Howard Leadership Academy will open this Fall. High school students who will have completed at least their freshman year (or international equivalents) by June 2026 are eligible to apply.
Visit www.njcts.org/academy to learn more.