EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. In cased you missed any of the first 22 weeks, you can read them here. For more information about Troye, please click on his name or visit his website.
Why are we all so self-conscious? Maybe we are not all self-conscious, but I do have to say I still am. I guess that in all actuality I am still somewhat new to this. Remember, I am still only about five years fully out of the TS closet. Even though I have achieved so much in the TS community in those past five years, I still constantly feel judged.
I have a lot of respect for all those children out there who speak out and are open about theirs TS, but I still know there are so many children out the hiding and crying in corners. I’m glad I finally opened my closet door, because I have had the chance to reach out to many of those kids.
Most of what I do is somewhat for myself, to help me accept my condition, and to learn more. But the real drive behind all my motivation is the kids. In the past few months, I have met children, or parents with TS and have been able to guide them into a community that will help them grow and learn more about their disorder.
However, there are so many more still out there, confused and asking themselves, “Why am I doing this?” and still no one around them is educated enough to tell them. Even though some studies say TS is hereditary, that doesn’t mean that the person in the bloodline is even aware of what they have.
I started having tics at around 10 or 11 years old and was not diagnosed until I was 18, but I still don’t know where it came from. I could possibly see it in both my parents, but with both of them past on, I still don’t have an answer. Maybe in the future the answer might come out, but I hope not, because that means it will come out in one of my nieces or nephews. I could not imagine having one of them being diagnosed with this mysterious syndrome, and nor do I wish it on any of them, but if they were, at least they have me here to help guide them along.