HolisTIC: Magnesium Citrate and Taurine

This post is dedicated to Veronica, who was sweet enough to write me a little note asking me where the heck I have been. She misses me! Hooray! I have missed this site, too. To be honest, I have been kind of a whirling dervish of house work, kids, trying to figure out employment, getting a new job, quitting because my boss was an 84-year old maniac who couldn’t stop screaming about my subject lines “Horseshxt! Superfulous Horsehixt!”, fretting over finances, attempting not to fret over finances and ultimately deciding that my priority for now is to be as present with my kids as possible given that we have a four-month summer coming up.

Yes, let me say that again. FOUR MONTHS.

Here is how I feel about that concept.

1

Just kidding. It’s more like this.

2

But that’s okay. I am going to make the most of it. I have finally decided to make my income by concentrating full-time on Ebay and freelance writing. Sounds like a weird mix, but it works.

Writing Clients

Blogging for a surrogacy company – GlobalIVF

Bloggin for a prescription discount company – SimpleRX

Ebay

1

Here’s my store. I am figuring out the most efficient ways to list, sell and ship my items. The ultimate goal is less thrift store items and more New with Tag items purchased downtown. I figure if I buy the same item in bulk, I only have to list it once rather than taking a gazillion photos/day. Other than filling orders, I can spend my time taking care of my wee ones and working on my book marketing which leads me to my final two points:

Continue reading

52 Weeks of TS: Week 50

EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. With just TWO weeks remaining in this series, there’s a chance you missed one more entries from his exciting, revealing journey. You can read all of them here. For more information about Troye, please click on his name or visit his website.

I’ve been doing a lot of thinking lately, thinking about what I’m hoping to achieve through my writing. I was asked about this topic this week when I did an interview about blogging, writing and reaching out to the TS community. The interview was for the TSA newsletter, and it got me thinking: Besides a little ADHD and having a little difficulty concentrating, I don’t have that many problems writing. I can set a time line and finish the project in that time line. If I sit down in front of my computer, the words just roll onto the screen. I might not have a hard time now, and enjoy what I do, but this wasn’t always the case.

Back in school, I was always behind with my work and it was always a struggle. Being in a classroom full of students with all sorts of distractions did not make it easy. I know there are still children today who are struggling the same way, too scared and embarrassed to say anything. I wish I knew then what I know now, maybe I could have changed something in my educational process to make it easier and more enjoyable.

I have noticed recently that my tics are changing. I guess that they are always changing, but this is different. I’m not sure if they’re getting worse or if I’m just having a harder time suppressing them. I have said before how I have been getting more comfortable with my tics and not feeling the need to suppress them, but even in situations when I’m trying to suppress them I am finding it to be a struggle.

I’m starting to think it might be the Chinese herbs I’ve been taking. I have been taking them for more than six weeks now, and I don’t feel as if it’s helping at all. Now I’m just in a panicked state, wondering if I screwed up my body more with the herbs. I have made a decision to stop taking them, I have not spoke to my herbalist about this yet, but I just feel as if it’s something I need to do.

Our bodies are constantly telling us what they need. If we lack vitamin C, we crave orange juice; if we need protein, our body will let us know it needs some. This is how I’ve been feeling this week. I have been having many smaller tic attacks that I can’t control, and there is something in my body that is pointing to the Chinese herbs. So yet again, one more failed attempt to find my nonexistent path to normalcy.

One of the new tics I have noticed is a violent flipping in the middle of the night. I always thought I did not tic in my sleep. Even my husband has said that he knows when I’m asleep because I don’t tic anymore. In the past few weeks, I have noticed that In order to roll over, I tend to do this violent full body twitch to roll over. It’s so violent that I actually wake up. It wasn’t until this week that I started wondering about this new strange movement. Is it a new tic?

The other morning my husband woke up and told me I was not allowed to keep complaining about his snoring if I was going to continue this violent flipping thing I was doing. That was it, I was convinced that this was a new tic. My husband has noticed this new tic, and it is even keeping him up. Well I guess it’s even with the amount of time he keeps me up with his snoring.

I think this new tic was the last straw in my decision to stop the Chinese herbs. Is this new tic caused by the herbs or is it just more of the waxing and waning of the syndrome? It’s just gets me thinking more about what I might be doing to my body with all of these attempts to find a cure. Is there a cure? Is little old me going to be the one to find it? Is my life that bad that I need to keep attempting to do this to my body?

The truth is my life is good. I’m happy; I just do these weird movements. I’m sure I could continue educating people about the reality of TS, but how much would I really get across if I looked normal. If I twitch and tic, it will be easier to start a conversation if someone notices.

Maybe all of these attempts to find the cure, might be one more way for me to hide from whom I am, and that’s not what I want to do. Throughout this year, I have tried so hard to educate people and every time I do, I experience the greatest, warmest feeling inside. When I was hiding from who I was, all I felt was shame and loneliness. Why would I want to go back there?

I still find myself doing little things to hide from who I really am. This week I did some shopping for some winter clothes and I realized something else. I love hoods. Most of my shirts, sweatshirts, or coats have a hood. Wintertime is the best time for me to show off this love, but there is more behind this fascination. It is a way for me to hide. If I have a hood on, I feel like people can’t see my tics.

Armed with my hood, my sunglasses, and my earphones, I am hiding from the world. I think it is time to take off my armor, take off the sunglasses, take out those earphones, and pull that hood down off my head. Life is a learning experience and we spend our whole life doing this. Perhaps the whole reason I have gone on this journey was for me to learn. Let the world see me for who I am.

Until next week, “I’ll tic to you later.”

52 Weeks of TS: Week 48

EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. With just FOUR weeks remaining in this series, there’s a chance you missed one more entries from his exciting, revealing journey. You can read all of them here. For more information about Troye, please click on his name or visit his website.

It’s a quiet night in New York City — not a normal night, but a night that you think you can walk down the street and let out one of those tics. One of those weird and strange tics. Can you really walk down the street in New York and let out a barking tic without anyone noticing? Nope. No matter what there are still people out there.

Just when you think you’re alone and you fling your head around, or make some weird vocal tic, someone walks around the corner. You see the stranger look at you with that questioning look, asking themselves if they really saw or heard that. They subtly look at you to see if it happens again, and wonder what is wrong with you.

This is the point where you try to cover it up, a violent throat clear as if you’re choking on something, or maybe a swatting at your face as if there was some bug on your face. Did it work? Do they really believe the cover up, or do they just think you’re a crazy person?

We travel a hard and difficult road. As anyone with a disability, or something that makes them different, you can never really understand what they are going through. I can write and write about what is going on in my mind and body, but does that really put you in my shoes? Can you really understand what is going on in a body of someone with TS? Do you feel the fear, do you understand the embarrassment?

I don’t think someone will ever truly understand unless you have actually experienced it to the level of someone with TS. I can only put so much into words and on paper, but the truth lies inside me. The emotional and mental war that goes on inside me sometimes feels like an endless battle, but I continue to fight. I fight with my words and experiences in hopes to educate one person, but that’s only part of the war.

I might be able to dispel some of the stereotypes of TS in one uneducated individual, but I still have to battle what’s going on in my body. Education does not make my tics go away, it doesn’t calm the anxiety, and it is not going to rid the embarrassment I live with. I fight these battles alone.

To fight these battles I find new weapons all the time. It’s almost like a video game; if one weapon doesn’t work, I go into my arsenal to find a new better weapon that might do the job. So far, I have found some good weapons. The fish oil has been working great with my anxiety. It has not rid me completely of all my anxiety, but so far so good. I never thought that I could be or would be as anxiety free as I am today, but I do feel blessed by this.

After living with such anxiety for so long, it is hard to get used to being as calm as I am. I still am having difficulty dealing with the lack of anxiety in my everyday life. As I said last week, I have become much more laid back with my daily rituals. However, it’s a soothing change to not be worried about so much.

The world is not going to end if I wait until morning to put the dishes in the dishwasher, or wait an extra day to water the plants. It’s a beautiful thing to sit in bed for that extra hour and not worry about finishing everything that has to be done before I have to leave for work. If I don’t get it all done, there is always time to do it later.

One of the newest weapons in my arsenal is a combination weapon of acupuncture and Chinese herbs. Does this work? Is this working? I’m still not sure. My acupuncturist said it takes about four to six weeks to see a difference. As for the acupuncture, I have reached that six-week timetable, but I still have not seen any positive changes.

Last week I said that I felt as if my tics actually got worse after my session and actually may have had inflamed muscles in my back causing horrible back pain. I discussed that with her this week and we tried a new path in our journey. Instead of lying on my back and getting needles strategically place on my front, this week I laid face down with needles in my back.

In addition to the needles, she also used an ancient Chinese method of cupping which has been said to be an effective form of deep tissue massage. Did this new path work? Once again, I can’t say. By the time I had my appointment, the back pain was gone, but who knows, it might work in the long run.

I was able to reschedule my book release party this week for A Day in the Life of Tourette Syndrome because of the lack of attendees after the last book release. It was quite a success, and I was able to meet and talk to some of the people that I reached in my battle to educate. Just to hear how much they have learned from my words made everything I do worthwhile.

I know I can’t change the world all by myself, but I can get one step closer with each person I reach. I’m going to continue to reach out to people and educate them. If we all try in some way to educate someone, we will be one step closer to educating the world.

Until next week, “I’ll tic to you later.”

52 Weeks of TS: Week 47

EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. With just FIVE weeks remaining in this series, there’s a chance you missed one more entries from his exciting, revealing journey. You can read all of them here. For more information about Troye, please click on his name or visit his website.

Happy birthday to me! Speaking of birthdays, I think I have concluded that I want my cake and I want to eat it, too. This has nothing to do with my actual birthday, but more about my life. I have been taking the fish oil for about two months now and have noticed different changes in my body.

Not only has it helped decrease my anxiety, but now I’m thinking it might be helping a bit with my OCD. I don’t think it is actually ridding me of my OCD tendencies, but I think that a lot of my anxiety triggered my OCD. It’s not affecting the germaphobia part of my OCD, but the cleanliness part is being affected. There are little things around my apartment that are taking me longer to do than they normally would. I’m actually leaving dishes in the sink, and I’m not freaking out about things being in the right place.

I’ve spent the past year trying different things to rid myself of different symptoms of TS. Now that I have decreased my anxiety, I’m happy, but am I ready to rid myself of certain OCD tendencies? I have always prided myself on the cleanliness and organization of my home, and now I feel as if it might be suffering.

There’s no winning. Either I can be filled with anxiety and have a clean home, or I can be relaxed in a dirty home. I know it’s really just my mind; my home is not that dirty. It’s yet another roller-coaster of emotions going on in my body. For example: Once we are done cooking, I will look at the dishes and have a little freak out in my head, telling myself I should clean the dishes, but there’s another voice that says I can do them later. It’s time to relax.

Who is this voice telling me that I can relax? I haven’t relaxed in years, and now that I am, I’m not sure if I’m ready. I know that this might make no sense, but I guess this is why I’m writing it. Sometimes things that happen in the head of someone with TS doesn’t make sense to someone else, but it might make sense to us.

I had yet another acupuncture appointment this time, but this week was different. Every week she pokes me with a bunch of needles, always in different places on the body. Sometimes on the head, sometimes in the ear, or wherever. It doesn’t hurt, but I have yet to notice any differences with my tics until this week. Nothing got better, but instead got worse.

All evening I kept on experiencing weird muscle spasms and new tics, but they were not like normal tics. I know when I’m about to tic, but these tics came out of nowhere. They just happened and that was it. This went on through the night and even after I went to sleep. That night was one of the worst night’s sleep I had in a long time. Every time I fell asleep, one of my muscles would jerk and wake me up. I was freaked out, wondering how long this would last. Thankfully by the morning I was my normal ticcy self, but I was left with a horrible back pain from ticcing all night.

The back pain is not new to me. This is the back pain that I spoke of before. I get huge knots in my back from ticcing, stress and anxiety that cause excruciating pain. It’s always on my right side, causing me not to be able to move my neck, turn my head or have much movement in my right arm. There is also another thing that lives on my right side, all my tics. Every time I tic, the pain just runs through my whole right side. I’m not blaming the back pain on acupuncture, but it is definitely something I’m going to bring up to my acupuncturist next week.

Despite all the pain, I still had to live my life. It was a full week. I also did a book interview for an online web show. Normally I would be extremely nervous about this, but I wasn’t. I’m not sure if it was the fact that I had so much going on, or maybe it was the fish oil calming me down. No matter what it was, the interview went well.

I’ve never been one for public speaking, but I do have to say, it’s much easier when you know what you’re talking about. I have yet to actually watch it. That’s the thing, I hate watching or listening to myself. I can hear my tics and see them. I have become more comfortable ticcing, and being myself, but that doesn’t mean I sit around watching myself tic. No matter what, there is still that little self-conscious boy inside of me. That shy, scared little kid that doesn’t know what’s going on.

No matter what is going on in our life, I’m sure we can find something we are thankful for — we are alive. We have been blessed with the gift of life. Even though we might be given other gifts in life, we need to acknowledge that they are gifts. I might have spent most of my life hiding from my TS, but I now see it as a gift.

I feel I have been given this gift to learn from, and to educate people about the syndrome. I’m thankful for the people that I’ve touched, I’m thankful for the syndrome I was blessed with, and I’m thankful for you. Until next week, “I’ll tic to you later.”

Celebrities with Tourette Syndrome: Stories

If you or anyone of your loved ones were diagnosed with Tourette Syndrome, it doesn’t mean that either you or your family members can’t lead a normal life. Tourette disorder is not a death sentence neither it is disability, in fact, you can live a long and happy life and even leave a footprint in the history as a successful person.

In proof of this statement, below is the list of people who managed to become highly-successful while diagnosed with Tourette.

  • David Beckham. David Robert Joseph Beckham, a world famous English footballer (soccer player) admitted to have OCD (obsessive compulsive disorder) and Tourette Syndrome early in his career. He wants and needs everything to be perfect. Before Mr. Beckham can relax, he has to put everything in a straight line or in pairs. While diagnosed with OCD and Tourette David Beckham managed to win league titles in four countries and play for outstanding clubs like Real Madrid, Milan and Manchester United. Overall, during his career he played 741 games and scored 129 goals. He is also known as a fashion icon and a wonderful husband and father of 4 children.
  • Mahmud Abdul-Rauf.  Abdul-Rauf is a former basketball player known throughout the world for his most accurate free-throw shooting records. Mahmud has been suffering from Tourette Syndrome since he was a kid. His body tics are quite noticeable even during a game. While a lot of people discussed and even bullied him at first, Mahmud talked openly about him having Tourette and even emphasized that Tourette made him seek perfection in everything and achieve the great results he has. Mahmud Abdul-Rauf had a successful 9 years career and is still recognized as one of the greatest basketball players.
  • Howie Mandell. Howie Mandell is a famous comedian, brains behind several TV shows and a recognizable host of “America’s got talent”. His condition is similar to David Beckham, Howie is seeking perfection in everything. He even has two houses, one of which is aseptic, as he is also suffering from germophobia, which turns into severe tics. One of the 100 best comedians of all time, Howie has been very open about his condition and is sure that it hasn’t hold him back in his career and success.
  • Howard Hughes. A billionaire, innovator and an outstanding aviator, Howard Hughes, was also suffering from Tourette syndrome. His “eccentricities” as well as germ-obsession didn’t stop him from being one of the richest and most successful people on Earth. He is remembered as an unusual director and producer of Hollywood movies as well.
  • Dan Ackroyd. Famous Canadian actor was diagnosed with Tourette syndrome and Aspergers at a very young age. When he was a kid, he suffered from body and vocal tics and he could often hear voices. Fortunately, most of his symptoms were subsided by the successful therapy treatment when he was 14. Dan Ackroyd built a great career on television: he was a cast member of Saturday Live Show and he also starred in several movies like “My Girl”, “Ghostbusters”, “The Blue Brothers” etc.

P. Green is an author of “Celebrities with Tourette Syndrome: Stories”. Right now she works as contributor for the Android app for parents at Pumpic.

52 Weeks of TS: Week 46

EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. With just 6 weeks remaining in this series, there’s a chance you missed one more entries from his exciting, revealing journey. You can read all of them here. For more information about Troye, please click on his name or visit his website.

I’m tired!! I have to say, I think this has been one of the longest, most exhausting weeks that I’ve had in a while. I had a freelance job doing hair and makeup for a high school musical, which I do about 5 times a year, but this one was different. I usually design the show three weeks in advance, but I missed two weeks. I ended up designing the show on Monday, and we opened on Wednesday. This just made for a very stressful week, not anxiety, but a lot of stress.

Just like anxiety, stress triggers my tics, so it’s been a very ticcy week. I feel as if my brain has been bouncing around inside my skull all week. My neck tic has been bad all week, and I’ve been taking aspirin for the constant headache that does not seem to go away.

Usually, I try not to suppress my tics in my everyday life, but while I’m working in the high school all bets are off. I just feel as if I have to suppress them.

I guess it has to do with my own high school experience. There was always constant mocking and my fellow students were always making fun of me. Once I walk back into a school, it tends to bring me back to that time and place. It’s a cruel world we live in. I try not to suppress my tics in many adult situations, but when you’re dealing with uneducated ignorance and immaturity of high school kids, it can be hard to explain. How do you teach someone something who thinks that they know everything?

A person with Tourette Syndrome has to have thick skin. It’s not something we are born with, but we have to grow it. I thought about this a lot this week, and I’ve realized that we have been supplied the greatest weapon for our fight to educate — our mouth. The more we open our mouths, the thicker our skin becomes and the stronger we become, but it can be a hard thing to do.

When we are kids, we are scared, nervous and possibly beaten down by ignorance. It can take a lot for those shy kids to battle their own fears and demons, to turn around and speak about the very thing that has brought them down. Look at me. It took me about 15 years to start my battle against ignorance, and I still deal with fear. Despite the fear, I still try to fight the fight and continue to educate people.

Continue reading

4 things someone with Tourette wants you to know

EDITOR’S NOTE: This blog entry was originally posted by Brittany Hays to ThoughtCatalog.com.

I’m sure at some point in our lives we have all come into contact with someone who has Tourette Syndrome. For those of you who haven’t, well, you have now. I have Tourette. I was diagnosed around age 9 in the fourth grade. Talk about trying to fit in. I never did ‘fit’ in, but looking back I’m glad that I didn’t.

To me, being able to live your life without the worry of upsetting a specific group of friends makes more sense, and quite frankly involves much less drama. I hate stereotypes, mainly because they give off false information that aggravates the person or group that you are stereotyping.

One stereotype that I get put into for having Tourette is that I cuss and say swear words. I have never done that. Tourette isn’t about cussing. In fact only 10 percent of people with Tourette actually cuss involuntarily (it’s called coprolalia):

1. If Tourette’s was only about swearing, I think I might actually enjoy it more. Getting to say whatever is on your mind simply because you cannot help it seems awesome, right? Well, it’s not. Try applying for a job. Who is going to want to hire someone who says “f— you” every two minutes? Not many. It’s not fun or funny. It’s humiliating. Tourette’s is about acknowledging society’s ignorance, and accepting that people are people. Now, I am not saying that I don’t ever catch myself stereotyping or judging people because I do. I mess up, and act impulsively, just like you because…well….I’m human also.

2. Have you ever been told to stop sneezing? Probably not, because most people know that you cannot control it. Imagine getting asked that when you go to order food at a restaurant because you are constantly sniffing, or are shopping in the local mall and you smack your lips all the time. It gets frustrating, but Tourette is about realizing people question everything, and that’s okay because it’s human nature. Honestly, if people didn’t question what I was doing, then I would get worried. It shows me that it’s human nature to be curious. By asking what I am doing, it lets them learn something new, and hopefully they can pass it along to others.

3. To me, Tourette is about learning to laugh at yourself and acknowledging that doing so is acceptable. If you can’t laugh at yourself, then people are going to assume that your Tourette is a weakness for you. Yes, at times I would enjoy a little break, but in the end I am a stronger, more intelligent person because of my ability to embrace what would be considered a weakness.

4. My Tourette has allowed me to appreciate differences in people. It’s taught me to not only be more accepting of myself, but also of others. You never know what anyone is going through until you have been in their shoes. Having Tourette has given me a way to see the world in different ways. I aspire to learn about others, so that I can learn about myself. Aren’t we all connected? Don’t we all deserve dignity and respect?

You see, I don’t want sympathy from people, or to hear, I’m sorry, that must suck. Yes, at times it does suck but you know what? I am alive. I have a house, and wonderful parents who have provided me with a life of happiness, so if the worst of what I must go through is to have this disorder which in turn has only made me a stronger individual, then I am grateful. I am grateful that I do not have to wake up in a hospital bed, or out on the streets. I’ve been blessed, even if that blessing seems hidden at times.

Embrace your differences. If each of us were the same, this world would be dull and boring. Be curious without being cruel.

Tourette Syndrome + OCD was exhausting & difficult

It was more than 23 years ago that I was diagnosed with Tourette Syndrome.

I’ve learned a lot in that time. About myself, about others and most of all, that our relationship with mental health and conditions like TS is far more challenging than it should be.

My parents had a lot on their plate, jobs, managing a household, raising 3 children (one with considerable special needs), when I started developing some unfamiliar behaviours. A reoccurring urge to violently shake my head was one that began to frighten them. I once became so distracted with this urge that I stopped my bicycle in the middle of the road to indulge, without paying attention to the flow of cars around me. Sometime after that we began seeing doctors and specialists and figuring out what was going on.

Tourette Syndrome is a neurological condition that essentially causes repeated involuntary movements and sounds that are referred to as “tics”. It affects everyone differently, and contrary to what you may have seen in movies, most persons affected by it do not swear uncontrollably.

Tourette Syndrome was something seemingly unknown to most people and there was lots of learning for all of us to do. What was most challenging for me wasn’t necessarily my life at home or these urges (“tics”). It wasn’t that I had to live with them that caused me the most trouble, it was that I was expected to live a normal life in a world that wasn’t always going to just let it happen.

From experience, I quickly knew that each time I gave in to my tics, someone was going to notice. I knew that each time someone noticed, they were going to make choices. Were they going to pretend nothing happened? Were they going to exploit the opportunity to make a spectacle of it and lead others in a chorus of teasing and diminishment of my character? Or were they going to simply get “weirded out” and lose trust in even being near me?

Naturally, thinking about all of these things stressed me out and just fuelled more of a need to indulge my tics. Trying to hide and suppress them took a lot of energy. During the worst of it, there were probably days where I spent most of my time managing these expectations and very little on school work, engaging with friends or anything else until I finally had a moment of privacy. I was usually too exhausted to do a whole lot with those moments.

As I’ve written before, there were other things also happening to make my childhood difficult in ways that probably interacted with or exasperated this condition.

Continue reading

Myths and truths about Tourette Syndrome

Ever since George Gilles de la Tourette discovered Tourette have people discussed and questioned real signs of the syndrome. Everything starting with how the disorder manifest and ending with the ways it should be treated is being discussed by doctors, patients and their relatives for over 100 years.

The general meaning of the syndrome is described as a neurological disorder which is characterized by frequent involuntary vocal tics and movements.

According to a PhD clinical researcher and doctor Douglas Woods, Tourette happens in 6 to 1000 people. Adults and kids suffering from the disorder can experience numerous problems like repetitive strain injuries, numbness, and ADHD. Kids suffering from Tourette increase chances of getting ADHD (attention deficit-hyperactivity disorder) 60% more.

In this article we will go through top myths and truths about Tourette syndrome to create a clear picture of the disorder:

  • Myth #1. Everyone with Tourette syndrome use obscenities uncontrollably. The majority of people describe Tourette syndrome as such that makes you swear uncontrollably, in fact some believe it to be the definition of the syndrome as they often see in movies. However, only 10% of people with the syndrome experience it.
  • Myth #2. Tourette is caused by bad parenting. Doctor Woods says that the syndrome is genetically based. And although scientists couldn’t isolate a single gene, they came to a conclusion that it is a complex of genes that causes the syndrome, which proves that it has nothing to do with parenting.
  • Myth #3. Fear causes tics. Some people think that tics caused by Tourette syndrome are actually caused by nervous surrounding and fearful environment around the patient. In reality, it has nothing to do with the way of living, it is caused by the basal ganglia dysfunction, involved in motor control.
  • Myth #4. Medication is the only treatment. It appears that medication is not the only treatment when it comes to Tourette. If tics aren’t repetitive enough, individuals, especially children can be cured with a help of behavior therapy. The therapy teaches patients to recognize the time when tic is about to happen in order to control and even prevent it. People with Tourette syndrome admit to experience a premonitory urge right before the tic, which can be expressed as an itch or tickle.
  • Myth #5. Teaching kids to recognize tics can increase their repetitiveness. Researcher found that kids who have successfully suppress tics, do not have an increase in tics. The lasts study showed that in some cases, tics decreased by 17 % after the therapy.
  • Myth #6. People with Tourette cannot lead normal, active lives. On the contrary, people diagnosed with Tourette syndrome tend to be highly successful people. David Beckham, Michael Wolf, Dan Ackroyd and Marc Summers are living illustrations of successful people who have Tourette. 

“Why do you let Tourette rule your life?”

This week I’m taking a week off from the “52 Weeks of TS” series that’s been posting here on the TSParentsOnline blog for the past 41 weeks. Today, I want to talk about one simple question that someone asked me:

Why do you let Tourette rule your life? 

What an interesting question. I don’t think my Tourette rules my life, it inspires me. I let my writing rule my life, and my ability to educate and inspire other people.

There are hundreds of thousands of kids and parents of kids that are dealing with complex disorders and syndromes, that they don’t understand. It’s even harder for the parents when the medical professionals don’t fully understand it.

These parents and children search for understanding, and I think through my writing (books and blogs) I have helped bring a little bit of understanding to the complexity of Tourette Syndrome. I have heard from hundreds of parents telling me how through my writing, they understand what their child is going through, and kids saying that I have wrote what they are trying to say. they feel like they are reading about themselves.

The most effective way to educate is opening your mouth, and that’s what I have done. we all have the ability to educate, but first we have to open up.

If children do not learn the way we teach them, then we must teach them the way they learn.