2017 NJCTS Youth Scholarship Award Essay: “Tourette Syndrome and its Lasting Impact on Me”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2017 Youth Scholarship Award contest. 

Daniel O.

I was diagnosed with Tourette Syndrome at 6 years old. I was very scared when I first found out I had some rare disease but my mom made me feel better about the condition that I had because she would educate me about why my body was doing the things it was doing. I started to become more aware of my tics, later on in my diagnosis I found out about some specific learning disabilities I had, and began to develop anxiety issues.

Tics have waxed and waned my whole life but thankfully for me, my tics weren’t as noticeable compared to some other children who had Tourette Syndrome growing up. Thanks to this, I was never really subject to bullying. However, the types of tics that I had such as shoulder shrugs, rapid blinking, joint popping, and muscle flexing takes a toll on my body and can leave my back in pain on days where I tic a lot. Recently I’ve learned to cope with these tics and use conditioned response therapy to help relieve them.

I am fluent in many subjects that don’t require much math skill such as language arts, woodshop, and many other fields. I’m a creative person but I feel as if I my creativity and knowledge capacity is limited due to my learning disabilities involving math. It is hard for me to stay focused on a math problem and when doing many math problems I become anxious and overwhelmed. Learning math is hard for me as well because I will learn about certain types of problems or theories and we’ll just barely grasp it. When we move on to different theories, I sometimes forget what I learned before making it more difficult to learn new problems. I’m lucky enough to have a tutor in my school who I am close with who helps me when I struggle with math.

Not until quite recently have I become aware of my anxiety issues. I tend to get overworked on things and tasks that many people find normal, but my brain blows it out of proportion. This can cause me to rethink a lot of decisions I make as well as a sense of self-doubt. This ties in with my learning disabilities and can aggravate my tics.

Tourette Syndrome will always have a lasting impact on me, when I go to college, when I get married, and when I have kids. My tics will still be there, my learning disabilities will be there, and my anxiety will be there as well. I need as much support as possible getting into college so I may become successful and independent so one day I can get married and have kids.

2016 NJCTS Youth Scholarship Award Essay

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

I have had TS all my life, and it has affected me all my life, even though I may not have known what it was until more recent years. Knowing that I have Tourette Syndrome gave me a sense of identity, and a group of people to belong to. More importantly, it gave me direction and even more reason to create. I have always prided myself in being an artist, in particular a photographer. Being diagnosed with TS has given me a need to create and provide good representation for those with TS. I feel as if I need to prove to the world that I’m not some crude video on YouTube for people to laugh at, I am a remarkable human being that can create something beautiful out of anything. Having Tourette Syndrome has its good days and its bad days, and even on those bad days I can be reminded to keep on going and keep on ticking because TS makes me, me. I am the most important thing I could ever have. Tourette Syndrome showed me that while things can be uncontrollable, wild, and unpredictable, there is always a place for you to belong. TS has taught me that you have to be willing to go with the flow, and that not everything has a reason, which I believe that is one of the most valuable things you can learn going into adulthood. Accepting things as they are will always be a benefit to you, especially with something like Tourette Syndrome.

Vlog: Creativity and fighting for your goals in life

Hi! This is my new vlog! I wanted to show you some creative stuff you can achieve BECAUSE of your Tourette Syndrome and tell you why I think creativity is a talent when you have TS 🙂 Enjoy!

I actually did this vlog in Dutch as well because I think it’s important for young kids to know that TS is not just bad. You can see the Dutch version here.