Here are a list of book titles and websites/films about Tourette Syndrome that I thought you all might find useful! 🙂
“I Can’t Stop” — Holly Niner A Story about TS (kids book)
“Adam and the Magic Marble” — Adam Buehrens
“Hi, I’m Adam: A Child’s story of Tourette Syndrome” — Adam Buehrens (kids)
“Tic Talk: Living with Tourette Syndrome, A 9-year-old boy’s story in his own words” — Dylan Peters (kids)
“Teaching the Tiger A Handbook for Individuals Involved in the Education of Students with Attention Deficit Disorders, Tourette Syndrome or Obsessive-Compulsive Disorder [Plastic Comb]” — Marilyn P., Ph.D. Dornbush (Author), Sheryl K. Pruitt (Author)
“Front of the Class: How Tourette Syndrome Made Me the Teacher I never Had” — Brad Cohen with Lisa Wysocky
“Twitch and Shout: A Touretter’s Tale” — Lowell Handler
“Against Medical Advice” — James Patterson and Hal Friedman
“Children with Tourette Syndrome” — a parent’s guide, edited by Tracy Lynne Marsh. 2nd edition or newer
“Challenging Kids, Challenged Teachers” — Leslie E. Packer, Ph.D. & Sheryl Pruitt, M.Ed., ET/P for TS Plus
“The Explosive Child” — Ross W. Greene, Ph.D.
“Don’t Think About Monkeys” — edited by Adam Ward Seligman & John S. Hilkevich
“What to do when your temper flares” — a workbook by Dawn Huebner, Ph.D.
“What to do when your brain gets stuck” — a workbook by Dawn Huebner, Ph. D.
“Coping with Tourette Syndrome” — a workbook by Sandra Buffolano, MA
“House Rules” — Jodi Picoult (Asperger’s)
“Healing the New Childhood Epedemics” — Kenneth Bock and Cameron Stauth Continue reading →
The Youth Advocate of the Year Award was established in 2012 to reward a teenager whose contribution makes a difference to New Jersey’s adolescent and pre-adolescent Tourette Syndrome community. An NJCTS Youth Advocate is a person whose dedication and actions improves awareness and helps break the stigma of TS by educating the public, medical professionals and educators about Tourette and by supporting kids and families living with the often devastating neurological disorder that affects 1 in 100 children and adults.
A NJCTS Youth Advocate lives out the mission of NJCTS and advances public perception, understanding and acceptance of people with TS and associated disorders such as OCD, ADHD, anxiety and depression. Continue reading →
Come visit me on my Definite Possibilities website! Don’t know me? Here’s a little about me as we head into 2013:
I love to live an active life and explore. I am very passionate about helping others and I am currently in the process of putting together a fundraiser to raise money for Autism by cycling a marathon. The marathon is also being dedicated to my brother, who I am very close to and loves adventure and cycling. Unfortunately, at times, his “gift” prevents him from participating. In addition to that I am writing a book on anti-bullying.
I am a complete goofball, dorky and passionate — old-fashioned to a certain degree. I laugh every chance I get. I have a love for the outdoors and anything that involves me being around nature. Coffee. Campfires. A challenge. I love movies. Inspirational people.
My book, “The Line, the Itch and the Rabbit Hole,” chronicles my experiences with Tourette Syndrome. I had my first tic at age 7 (a sniffling annoyance, dismissed as a “bad habit”) but wasn’t diagnosed with TS until I was 23.
My symptoms dried out through my early teenage years but worsened in my late teens after I spent a number of years experimenting with drugs and alcohol. After that, TS remained a constant in my life.
I didn’t tell anyone around me about the diagnosis, not just because it’s a heavily misunderstood illness and I didn’t want to deal with any explanations, but also because I naturally like to keep myself to myself.
With the publication of “The Line, the Itch and the Rabbit Hole,” I finally have a means of relaying that information to people around me, and while I put off doing that, I would really like to communicate with fellow sufferers to learn how they dealt with the illness and the stigma attached to it.
I also suffer from Borderline Personality Disorder, have spent numerous years addicted to drugs and alcohol (sober now) and spent some of my childhood in a psychiatric hospital after an “accidental suicide attempt.” All of these things are explained in the book, available from Amazon for just a $0.99 download!
Hello everyone! I am trying to get the poem I posted on Friday published. I hope that it can spread everywhere and be seen. If anyone out there knows of a way I can get this poem, and my other poems, published please let me know!
I also am now officially in Chapter 5 of my book that I am writing. I am so excited to write more. Also, there’s less than a week until homecoming! It’s going to be so much fun! My tics are still being horrible, but I am making it through like I always do. Hope you all are having a not-so-ticky day. 🙂
It’s a cloudy morning where I am. Unfortunately, last night was horrible for me. In the middle of dance class, I started crying because my tics were causing me so much pain and my blood sugar was low. One of my friends helped me, so I made it through the rest of the class alright. But on my way home and when I got home, I broke down.
I have been going through a lot, and I have been feeling trapped by many things — tics being one of them. I hope things get better for me. I won’t put any negative energy onto here. I just wanted to let all of you know what was going on. Hope you all are having a easy, flowing day.
Herro der people of the interwebs and welcome to the very awesome super duper thingie majiggie WEDNESDAY!!!!!!!! It’s October 3rd, 4th week, 3rd day. Hooray! Rhymes. Just love em’. Anywho, my tics are well and nobody really asks about them — although, they DO ask why I go to the bus early.
One of the easiest but yet hardest solutions is to run out of the room, down the hall, out the back door and into the bus. Other times, it’s the person who’s coming with me to the bus. Then, that’s when I give them the lowdown. If not, it’s the person that’s running with me. Yeah. It’s pretty good. Now, to that love/hate thing I promised:
Shells at the beach stabbing my feet. I hate this one SUUUUUUUUUUUUUPER BAD!!!!! D:<
Raisins. Raisins, raisins, raisins. They just suck at tasting good.
Creepers. Minecraft is awesome, but creepers, don’t even get me started.
GLaDoS. I don’t know if I spelled her name right, but who cares? She is a MAJOR JERK! I mean, listen to this. “I think we can put our differences behind us. For science. You monster.” Kinda mean, don’t you think? Other than that, she’s WAAAAAAAAAAAAAAAY more mean. If you wanna know what I mean, play Portal 2. Continue reading →
I am a senior in high school and on the hunt to find a university that is “right for me. Two weeks ago, I visited Boston University. OMG! It is incredible! It has every major you could think of! The dorms are so cool! And the campus is beautiful!
Prior to my visit, I was able to schedule a meeting with an Admissions Office counselor. I learned that it is important to speak with someone from the university staff and tell them how you are interested in their school and explain your school experience with TS. I explained how I speak at schools about bullying and gave them a copy of my book, “Emily’s Tic.”
Although the one-on-one meeting was stressful, I am glad that I did it. The representative seemed impressed with my work. I strongly suggest educating others about your TS and then bringing those experiences to your college search process. The schools are now looking for students who have overcome challenges, and that is what we have done!
On another note: When I forgot all of my news articles at home showing my work with NJCTS, I was able to get a hold of Jeff at the NJCTS office, and he sent copies of them my way. Jeff always has my back 🙂
P.S. — If you have not already, pretty-please sign up for the Mendham Walk! It’s an amazing opportunity to have a fun day our while raising money for NJCTS’ education outreach programs. Chances are, you’ve been helped by one of those programs or know someone who has. They can’t exist without our help! So give back to the organization that has given to you — or, at the very least, has given to someone just like you! Thanks!
It is our choices…that show what we truly are, far more than our abilities.
~ J. K. Rowling
Hey everyone! Teens4TS gave me a great idea for this post — to talk about the book I’m writing. But, truth is, I’m writing several at a time. I doubt my writing all the time and what happens is I work on one while needing to edit the other ones. So I am going to talk about some of the books that I started. I won’t be discussing all of them because the rest include death, trauma and religion. And I do not want to start a war about religion and what’s appropriate to talk about.
First, I’ll describe the novel I’m working on right now. I started watching the show “Being Human,” and the ghost named Sally inspired me to write this book. I named it “Unsuccessful Departure.” I don’t think I’m great at titles, but my second mom would beg to differ. It’s about a girl with a hard family life. Her father is a nasty person, especially to her. Later on, she becomes a ghost and a decade later, a man moves into her home. She grows close to him and looks up to him as a father.
Next, I’ll describe my first novel that I started writing officially. I use the word “officially” because when I was in private school in 6th grade, one of our assignments was to write as much of a book as possible. Each chapter had to be 10 pages long. Mine was “A Singer’s Life,” and it turned out horrible, haha! But, anyway, the first novel I actually started to write on my own was inspired by “Avatar: The Last Airbender.” I named it, “Warriors of Dawn.” It, again, turned out horrible, but I am going to work on it when I get the chance.
Now, I will talk about the series that I was so determined to keep writing, but writer’s block won. It’s called, “The Manifest Series,” and I’ll explain why. The series is inspired by J.K. Rowling’s Harry Potter series. I decided that I was going to use my imagination at the highest level. Instead of just starting to write immediately, I mapped out everything. I brainstormed ideas. I made a list of plots…and that’s when I decided I’d use all of them. Continue reading →
Patience and perseverance have a magical effect before which difficulties disappear and obstacles vanish. A little knowledge that acts is worth infinitely more than much knowledge that is idle.
~ John Quincy Adams
Hi everyone. I haven’t posted on the blog in a while, and I do apologize for that. I’ll explain why.
I have been so busy with school. I know you’ve heard that a lot, but I have had big trouble with Geometry. Math is my worst subject, and I just could not deal with anything else. I procrastinated so much that I got far behind in my pace. I had almost a month to get everything done. I worked so hard, and on July 2, I finally got done with everything in Geometry.
I am so proud that I got back on my feet. All I have left is English 2 and Biology. I only have one thing left to complete English 2. I still have 2 modules to complete Biology. I have to complete everything before July 23. But after completing Geometry, I am able to post a whole lot more.
Also, I read this novel for English 2 called, “Chinese Cinderella” by Adeline Yen Mah. Some of you may have heard of it. Maybe some of you have read it. It is such an amazing book. I got so inspired that I am writing my own autobiography. It will be about how I went through so much in such a short time — how I came to be the person I am today. I hope it’ll help someone going through rough times someday. Continue reading →
Change does not change tradition. It strengthens it. Change is a challenge and an opportunity — not a threat.
~ Prince Phillip of England
Hi everyone. It is a partly cloudy day here where I live. So, everything has been OK so far the past week and a half. As you all know, there is a new admin on my page, Twitch and Jerk. I must be honest — it has been a bit hard for me. TaJ is my baby. It has been mine so long, and Shawnna has done a great job.
She has started conversation with so many of the fans. They all really seem to like her. But I am stupidly jealous of her. I like her a lot, but I’m just afraid that you all will like her more than me. She seems to be doing a better job than I am. I haven’t posted for the past week so she could get used to being an admin.
I also just felt like I couldn’t say anything because it wouldn’t be as good. I couldn’t say no to her when she asked to be an admin. I didn’t want to hurt her feelings, and I actually thought it would be cool for her to be an admin. I guess I just have to get used to change. I’m not a change person. It’s hard for me to deal with. Shawnna is doing a great job. I hope she keeps it up! I mean it. Continue reading →